My daughters are adopted from foster care, now in their 20's: one daughter is mixed bipolar, learning disabled, recently denied social security and is living in a room in a house with her boyfriend; and the other has mixed psych dxs (also hypochrondria, compulsive lying), severely learning disabled and hearing impaired, still on social security and living in an adult living facility with others not…
View moreDisability
Multiple severe disabilities may render people unable to walk or talk, unable to express their humanity the way most of us do—and yet they remain ineffably human and are often profoundly loved. Indeed, some parents exalt the purity of loving children who are incapable of manipulation, exploitation, or cruelty.
The question of how much someone with such radical limitations can progress is mysterious; some brains have proven surprisingly plastic, and some people have emerged from limitations that seemed intractable. How do we treat acutely disabled people humanely even as we acknowledge the ways that they are profoundly different from other people?
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falling through the cracks FL , USA -
anonymous A personal story NJ , USA It is not often that I find a book and realize as I read it that I have waited my whole life for such a book. That is my experience as I read “Far from the Tree.” I am the mother of 3 grown children and the concept of “vertical vs horizontal” identities is something I have never thought about. I grew up in New York City (Washington Heights) in the 50’s-60’s . I had an older brother who…
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Dianne Bilyak Dr. Irma King CT , USA I was honored to meet Andrew, at a fundraiser that he and his partner John, hosted for my friend Spencer's film project related to Our Little Roses in Honduras. I felt so grateful to him and for his book and was blessed to be able to thank him face to face.
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For about a year I was working on a memoir about my only sibling and our relationship. She has DS and we were born less than a year… -
Jody Gelb This Child CA , USA This Child
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We had pizza on Long Ridge road in North Stamford, Connecticut after our daughter was conceived on January 2nd 1994. We lived in New York City and I was 37 and this was our first child. I was more afraid of losing the pregnancy than of having a child with Down syndrome so I declined the amniocentesis because I knew that this might be our only baby and there was a risk of miscarriage… -
anonymous Far - Feels Like the Ocean CA , USA It was never in my genes to parent this way. Instead it's a learning curve that we are all going through in our family. Instead it's a grieving process and then a healing, accepting process that will be life-long. Such is our journey as the family of a child with intellectual disability, Tourette Syndrome and ADHD. The early years of intervention, therapy and special education didn't teach any of…
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Joanna Mintzer Raising an adopted bipolar child VT , USA More important than my story, i wish to thank Mr Solomon for writing what I think is one of the mostly timely and significant books of this century. I think you should win the Pulitzer for it. You have succeeded in writing the most profound and compassionate yet unsentimental study of the problems of identity and illness I have had the privilege of reading. You eloquently illustrate and articulate…
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Theresa McMillan My hug is my Smile FL , USA My name is Theresa McMillan, and I was born with a rare congenital birth defect called Moebius Syndrome. It affects the 6th and 7th facial nerves which causes paralysis of the muscles. I am not able to smile or have any facial expressions. I also have vision and hearing difficulties and hand and feet deformities and a slight learning disability.
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When I was born the doctor and nurses were all… -
Karen L Transcendence NC , USA My son, John, is 31 years old and has been diagnosed with multiple leaning disabilities, RSD, Epilepsy and Schizophrenia. I believe he has been living with many of these conditions since he was 5 months old. In spite of his challenges he is living independently, speaks at local mental health conferences and has received training as a Peer Specialist with the goal of working in a field where he has…
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Lily Grinsberg Beneath the Island NJ , USA There have been many books written about ways to help people with special needs. I am aware of only one that speaks about how to develop a relationship with such people. There seems to be a consensus that they Need Fixing and the focus is on the Problem, not on their uniqueness and need to be understood. I’ve discovered that a deep relationship is possible, even when verbal communication is limited…
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Eraina Davis The Good Life: Autism IL , United States I gave birth to Taylor when I was twenty years old. I was a sophomore in college when my parents retired to Florida. In an attempt to create a good life for us, I left Chicago at the age of 23 to teach in NYC. Over the past seven years, I obtained three academic degrees and traveled to three different cities. As the parent of an autistic child I experienced some of the best and worst challenges on…
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anonymous Big Hawaii kayak adventure Ca. , U.S. I'm a 53 year old involved in a hit and run accident at age 17. Since then I have overcome my disability. Now an advanced Hangglider with over 30 years, and 3000 hours. A big wave bodyboarder (been in the magazines Surfer, Bodyboarding) as well as skiing, sailing, kayaking, etc... also a welder. I'd like to write about my life story, and some of the amazing adventures I've done, to inspire others..…
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anonymous This Tree is the Different NY , USA I heard Mr. Solomon on WNYC this afternoon. You mentioned Tom and Karen Robards, who years ago became friends of ours. We met because my wife was the Treasurer of National Down Syndrome Society, NDSS, itself founded by friends of ours, Betsy and Barton Goodwin after they had a Down Syndrome baby.
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This was in the early 80's. When my wife was pregnant with our first child, I was extremely… -
Heidi Thaens Holding My Breath for 20 Years NY , USA My beautiful, talented daughter, Juliana, was attending graduate school at Yale when she became very ill with the flu. She continued to struggle along but then developed what appeared to be chronic fatigue syndrome, which became increasingly disabling. There are innumerable people out there who have similar conditions, which no one knows how to treat; conventional medicine has no answers, although…
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Byron M. A baby boy ID , USA My name is Byron, and I'm telling this story as if my son was telling it to you if he could.
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Hello my name is Phoenix and I am a special young man. I'm 11 years old and I am as big as a 18 year old, I wear a size 13 shoe for those who can't picture my size. The big thing is I have a brain function level of a 2 year old and can through quit the fit to, it's like I'm having a two year old… -
Athena B. My Unique Little Girl CA , United States My daughter, Eve Troy was born on 12/29/10. I had a perfect pregnancy and had no idea there would be any problems. She is profoundly deaf, unable to eat on her own and requires a gastronomy tube, has an extremely difficult to manage eye condition called corneal anesthesia and she has both gross and fine motor delays. She has a cochlear implant which has yet to show many results. We are, however, communicating…
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