About four years ago, I was on a news assignment filming at an elementary school where they celebrate their annual pioneer day. I was about to begin filming four women teaching quilting when the teacher stood and introduced all but one of the women. Immediately one of the women from the group stood and said the words that I could not get out of my mind, "And This is my sister, Mary; she is also a…View more
For centuries, people with Down syndrome (DS) were assumed to be uneducable, a lost cause, not fully human.
Breakthroughs in early intervention and education have demonstrated that people with DS can do more than anyone ever dreamed, and today there are actors, poets, and other accomplished people with DS, many living more than twice as long as was once thought possible.
Ironically, at the exact same time, genetic screening for the condition has become widely available, and many people are choosing to terminate DS pregnancies.scroll
I was honored to meet Andrew, at a fundraiser that he and his partner John, hosted for my friend Spencer's film project related to Our Little Roses in Honduras. I felt so grateful to him and for his book and was blessed to be able to thank him face to face.View more
For about a year I was working on a memoir about my only sibling and our relationship. She has DS and we were born less than a year…
It was never in my genes to parent this way. Instead it's a learning curve that we are all going through in our family. Instead it's a grieving process and then a healing, accepting process that will be life-long. Such is our journey as the family of a child with intellectual disability, Tourette Syndrome and ADHD. The early years of intervention, therapy and special education didn't teach any of…View more
I heard Mr. Solomon on WNYC this afternoon. You mentioned Tom and Karen Robards, who years ago became friends of ours. We met because my wife was the Treasurer of National Down Syndrome Society, NDSS, itself founded by friends of ours, Betsy and Barton Goodwin after they had a Down Syndrome baby.View more
This was in the early 80's. When my wife was pregnant with our first child, I was extremely…
I can't stop crying reading this book. I am the mother of a child with Down syndrome. She came to us via adoption. She is a different race than me. I am so madly in love with her and grateful that she is mine. It blows my mind that out of every kind in the world, I got her. Loving her has stretched me and changed me in the best kind of ways. Dancing with her is the purest kind of joy.View more