My fiance's daughter has severe autism and fragile x. I never new that even existed til i met britteny. She is 16 years old, but is kinda like a big version of a 6 year old. She bounces and rocks constantly, she wears diapers, she makes noises of all kinds constantly. She mimics and repeats people around her. When you talk to her she repeats what you say. She gets angry and very loud and ocasionally…
View moreDifference is what unites us.
The book is the beginning of the conversation. Tell your stories of difference and identity for yourself or your family. Share your hopes, your dreams, your frustrations, your stories of love or despair
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in , united states fragile x -
Tara Howland Borderline personality disorder Nj , USA My daughter is 19 years old and has been diagnosed with borderline personality disorder. It is considered one the most difficult mental illnesses to suffer with and to deal with for the sufferer and their family and the provider. My other daughter is 15 and is openly gay with ADHD and severe anxiety. My older daughter has a very high IQ and due to bpd being highly disregarded with a very low success…
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Nina Amalbert My DNA Chromosome genetic is unheard of. MA , United States All my life growing up, I always had another child point their fingers at me and call me a dwarf. Or someone would ask me all the time, "What's wrong with you?". Exactly my concern. What is wrong with me? Why was I born this way? Why doesn't any medical professional, know why I have this Syndrome? In 1979 when I was born, I was diagnosed by Doctor Larsen, that I have what is called, Larsen Syndrome.…
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Amy Mitz We Must Build Many Orchards NH , USA I was born a "typical" child but have known cognitive disability since birth. My older brother has autism, but was diagnosed later in life. He is now 61 years old and despite doctor recommendations early on, always remained at home, but no school existed for him until he turned 8 and the school was a 2 hour bus ride away, a bus that he had been riding, to my mother's dismay, had broken brakes - and…
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anonymous PREJUDICES (AND PRIDE) Minas Gerais , Brazil No, I am not Elizabeth Bennet. But reading Far from the Tree made me ponder once more on my own prejudices and pride. It can be surprising to find prejudices in someone who has been object of so much prejudice herself, but I dare to say, it is not unusual that even people who have to struggle with their own differences are prejudiced. As the whole of humanity tend do be, after all. Andrew pointed…
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Luciana Casotti Far from the Tree II DF , Brazil After reading the book twice and its intro numerous times, I can only hope Andrew will come up with a second volume of this precious book.
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anonymous Jen Bricker: remarkable disabled athlete AZ , USA Our book club selected this book for discussion. A few days ago one of our members circulated this video clip featuring Jen Bricker, a lovely and accomplished young gymnast who was born with no legs.
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The video speaks for itself. I thought it was a wonderful illustration of the themes of the book.
https://docs.google.com/file/d/0ByFUzo9KwryWWkRwUEw4bmZNaVk/view?pli=1&sle=true -
anonymous Might Seem Crazy What I'm bout to Say Oh , United States From the time I was 12 on, my father would make me weigh myself before dinner. In front of my mom, my brother, food on the table. My father then would say " No one will love you ever ! Look at how fat you are." Today my very mentally ill son said, " If I was a drunk like you were, I would have blown my brains out years ago." My son's words were different but rang the same. Mental illness is not anyone's…
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Jeanie Owen Everyone should read, if they dare! OR , United States My "story" is pretty mundane compared to the people portrayed in the book. I just want to say that this is a life changing book for me. I almost didn't complete it past the first chapter because I really didn't believe that a homosexual person could be balanced and logical about the issues portrayed. Was I ever wrong! I have a small shelf of books that I keep because they have changed my life in some…
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Nicole Luongo LIfe-Changing Surgery for CP FL , United States I have cerebral palsy. I had selective dorsal rhizotomy (SDR) at the age of 39. SDR is the only proven procedure to eliminate the spasticity caused by CP. The problem is that the medical community is not sharing the information. I, like most people with CP, stumbled upon it - on Facebook. I advocate for SDR. Read my HuffPost article here: http://www.huffingtonpost.com/nicole-luongo/sdr-life-changing-surgery-for-cerebral-palsy_b_5615021.html…
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Irene Chang omega-3s for depression OK , USA I tried to send something but the software ate it. I am so frustrated. I hit the return, not the Share Your Story button. I wonder how many inputs do you lose this way.
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Anyway, to summarize what I was going to say in one sentence: I eat peeled hemp seed and other sources of omega-3s and exercise to get them through the blood brain barrier. -
Cristina Trapani-Sc Far From the Tree Comes Full Circle Michigan , United States A bunch of years ago, I volunteered to have our family interviewed by Andrew Solomon for his book project about raising a child of difference. When the book was released to critical acclaim we were invited to join Andrew on the Katie Couric Show. From the beginning, I said I did all of this in hopes that any family of a child with Kniest Syndrome (a rare form of dwarfism) might find our story and…
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Erika C Waste Not, Want Not NH , USA My son was diagnosed with Autism at the age of 1yr, 10mos. I was in denial from that day. We sought more opinions and though I am lucky to live right outside of Boston, the mecca of medicine, having access to the best, most cutting-edge of treatment, I still had a very difficult time accepting that my son wasn't "normal". To me, he had up to that point seemed normal because he was and is my only child,…
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Debra M Adjusting Canada My 19 year old daughter has recently told me that she is Pansexual. That was a new one to me - so I have since researched it and am trying to understand it fully. I am fortunate that she has felt safe and comfortable enough to share this with me. She has not shared it with her father yet. She is not comfortable talking to him about her life. This puts me in an awkward spot. I have always told her…
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Anne McCarthy The Mile Run NY , US This is from my blog about raising a legally blind, multiply-disabled child along with his sister (for more, go to familyconnect.org and click on the Blog "Raising James")
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May 9, 2014
The Mile Run…and Longer Distance Events
Charlotte has qualified to do the mile-run race at the high school track. All kids who ran the mile in under ten minutes will be bussed from the… -
anonymous Nature v. Nurture It took me years to realize that the nature vs. nurture debate shouldn't concern me. Around age five, while being raised by my grandmother, I convinced myself that my father had died in a car accident. I had never met him, and saw my mother frequently (she was frequently ill, missing one eye, and suffered from severe memory loss). It seemed only natural that they had both been in a car accident—he…
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anonymous Congenital heart defect NY , USA My son was born 25 years ago with Transposition of the Greater Arteries. He was taken by Mercy flight to Boston Children's Hospital; I discharged myself from Buffalo Children's so that my husband & I could fly on a commercial airline to meet him. I can tell you that I relate to every aspect of your Ted Talk and have been reading your book, realizing that "only the names change" the stories remain…
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Olga Mecking Third Culture Kids ZH , The Netherlands I was deeply touched by "Far From The Tree". My children do not belong to any of the groups featured in the book, but a lot of what I read, I could relate to my own experience.
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I am Polish, my husband is German and we live in the Netherlands. While we do speak Dutch and feel at home here, we do not have a Dutch identity the way our children do- that is their horizontal identity. At the… -
Theresa K orphans NY , USA Reading the book was a revelation. I read its entirety on my iPhone on the subway and more mornings than not, I was moved to tears. What touched me was that I was working as a social worker working with women with HIV+/AIDS, mental illness, substance abuse, etc... AND, being an orphan, I always idealized unconditional love of parents for their children. Never having experienced it, I was simultaneously…
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Ana Wieder-Bla Fuck disability! NY , NY I have been waiting my whole life for this book. My disability is more complex than I can explain. It involves medical components, emotional components, mental components, mobility components and more. It took me a long time for me to believe that I was even smart (with a 130-150 IQ I finally believe I am). It has been a lifetime struggle to define myself as more then just a disabled person, or a…
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Ann Marie S. FL , USA I had a son who went through early intervention, so I know the story always continues.
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So, as a therapist, I have to wonder what we can do to protect ourselves from the rage of parents striking out at every opportunity of denial.
How do we share sparks of hope where there is denial, shame, ignorance, and neglect?
Every day is a struggle because oftentimes the issue is not the individual… -
anonymous Family Treason OH , usa
I wrote this poem several years ago when my family was struggling to accept our daughter's decision to marry a person of a different race -- a family taboo.
Family Treason
Whether by chance or plan
The fruit at times falls far
From the tree and sets its seed
In soil foreign to its stock
It may take root and bear fruit
Of… -
Nathalie Olichon Love is the answer France I am a french young woman of 27 years old. My mother died when I was 20 of a cancer, which she had during 9 months. The particularity of my mother is that she was diagnosed as schizophrenic. It's just a word because each schizophrenic is different. The reality is that she was in great suffering. Since I was 8 years old, I knew my mother as someone who, sometimes, often, wanted to kill herself, as…
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Richard Bury, D.C. Wats Wrong Wit Me Florida , USA Growing up in the 50’s and 60’s I would have to say most of it was pretty great. However, when it came to school I was at a loss, especially in math and reading. Though my siblings and friends were having no problems with learning, it was extremely difficult for me. When my parents and teachers asked what the problem was, I could not tell them because it is difficult to describe one’s problem…
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Viktor Prizgintas Car Talk NY , USA Do you want us to provide bus transportation ?
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Interestingly enough, this was a common and persistent question throughout the first three years of public education for Alex. In the matrix of autism treatment, there must be a class special education administrators take that emphasizes the need for autistic children to be transported by bus to improve their “socialization” skills. I… -
Jo Chopra McG UK , INDIA Moy Moy is so much a part of our lives we sometimes forget that’s not true for everyone else. So here’s the story of Moy Moy, the reason for and the inspiration of much of the work of the Latika Roy Foundation (www.latikaroy.org).
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Moy Moy is from a remote village in the Himalayas. Her mother had been sterilized after her 12th baby – but Moy Moy was conceived anyway. Determined to… -
Cheryl Hanks An amazing life WA , USA Judi Parker-from Grand Junction Sentinel can read about her amazing life. We were friends for 50 years and I can still see her mischievous smile as we walked/rolled (Judi was in a wheelchair her entire life) through the outdoor art of the main Grand Junction. She was rejected by her parents when she was born due to her deformities, had taught for 30 years, lived and drove on her own although she probably…
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Barbara Oppewall Acceptance of Addiction MI , USA This book helped me as the parent of a son with addiction. None of the chapters specifically address addiction, but the challenges we face are equivalent to those described. The book helped me get to a place of acceptance and appreciation for the joy and growth my son has brought to my life. It helped me put addiction into a proper context of parenting a challenging son who has defied all my expectations…
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Leslie Fabian My Husband's a Woman Now MA , USA I met David in 1987--while he was wearing a dress. He'd come to a gathering at a friend's home, with three other transgendered folks, to talk about gender issues. At the time, he believed himself to be "just" a cross-dresser. And I was enthralled, struck by his honesty and vulnerability.
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We were nearly 40 then, and he'd struggled with this proclivity for most of his life. Once, when he… -
Michelle Kosilek We Must Embrace our Sisterhood MA , USA My gratitude to Andrew Solomon for this American love story is exceeded only by my pride in the generous and courageous families he profiled so tenderly. Their stories filled me with hope for the futures of all our children; all our sisters and brothers. Our dignity can never be guaranteed by legislation, nor do we have the luxury of waiting for the pendulum of historical change to swing toward a…
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Patti M Hall Living Large is Not for Long ON , Canada Andrew Solomon gets this as right as possible. I celebrate your message and the vehicle you have given all of us parents of exceptional kids. We love, as hard as we can, even when it would seem impossible to go on. As the word and the message find their way to the surface, so the needs of the child, my child, find their way to priority in my life.
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My son is a giant. He lives with gigantism.… -
Robin T A tale of two sisters NJ I'm almost finished reading the book and have been totally engrossed. I have two daughters, 20 and 7. We are a blended family. My oldest does well academically but struggles socially. My youngest is social but has cognitive delays and receives OT, PT and speech. There is quite a bit of tension when my oldest returns home from school. She is constantly in competition with her sibling and at odds with…
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Martin Funes My second coming out 26 , Argentina I had to come out twice in my life. To my parents, at least. Both times were embarrasing, and both were very disappointing. The first time was when I was sixteen. At eleven I knew I was gay, and I had given myself a deadline: Either I told my parents before I was 18, or I told my parents before that.
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When I was sixteen I fell in love with a guy. We dated a bit. It was not a great love, but it… -
anonymous Nora NY , Bronx Dear Andrew,
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I just heard a re broadcast of you speaking on NPR radio. I was so touched and brought to tears. My story fits in, and oh, I have reserved your book with the library. My Nora is adopted and after raising another daughter, I was so angry at myself for not discovering Nora's deafness till she was 9 months. Not knowing anything about the deaf world, I/we was in a state of shock. I… -
April Martin Three-fer NY , USA I'm the lesbian mother, with my wife, by donor insemination, of a transgender son and a dwarf son (plus a third son as well). We gave birth in 1981 and 1984, before our children had many options of horizontal identities among children of LGBT parents. (My book, the Lesbian and Gay Parenting Handbook, HarperCollins, came out in 1993). My professional life as a psychologist includes an expertise in…
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rob boileau wouldnt change anything on , canada My daughter is autistic. I admit it took a long time of coming to acceptance of this reality in our life. I have been asked many times if I could change anything and truthfully I wouldn't. This disability being present in our family has taught me so much about life. After spending countless hours studying autism, I do know I can face anything that comes our way. Yes, there were times when she was…
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Stephanie Australia Watching Andrew Solomon's TED talk about love and acceptance, I felt compelled to tell mine and my mum's story.
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In 2007, my mother decided she was finally ready to divorce my father after 25 years of marriage, 2 teenage children and a sense of her own lost identity. Admittedly, the last 10 or so years weren't easy, and my brother and I watched as our 'family unit' unravelled into a household… -
CE no self Self, family, and social acceptance. Children growing up in a family with a father with untreated bipolar disorder and a mother who had no clue, moving more than once a year, and never understanding relationships within the family or outside the family in society...
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anonymous Bi-racial, bi-cultural Italy My daughter, an American with Irish/ Scottish ancestry, married a man from Trinidad, with African/ indigenous west Indian ancestry, so their two children, a boy and a girl, are bi-racial and bi-cultural. As their grandmother I want them to be able to fully develop themselves and express their uniqueness without the limits of other people's prejudices. They look like neither race but are their own…
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Kate Shand BOY South Africa My son's 17th birthday is on 19th June - next week. He hanged himself two years ago on 31 March 2011. He was 14 years old. This is an extract from a book I have written about him, us and what happened that day. It's simply called BOY...What brought Boy to a place where death was preferable to life? What path did he walk from birth to his still-so-young fourteen years? Was it something I did or didn’t…
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Frank G. Caruso This Is My Sister WI , U.S. About four years ago, I was on a news assignment filming at an elementary school where they celebrate their annual pioneer day. I was about to begin filming four women teaching quilting when the teacher stood and introduced all but one of the women. Immediately one of the women from the group stood and said the words that I could not get out of my mind, "And This is my sister, Mary; she is also a…
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Anne C Being a mother Ks , USA My daughter was 9 years old when my mother had come for a visit and noticed that one leg was shorter than the other. I felt guilty that I hadn't seen it myself. I love my daughter, so how could I miss something like that? That's the question I had asked myself over and over. I thought, that sometimes when you go for a walk small children will complain that they are tired of walking. Little did I know,…
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anonymous An Unplanned journey CA , USA When I was in a public elementary school in the late 1960’s, one of my friends had a younger sister with Down’s Syndrome. She attended the same school but was in a separate, self-contained classroom that we had no contact with except at lunchtime and recess. No one explained to us why she was so “weird”, as we said at the time. Most of my friends avoided having any contact with her whatsoever,…
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anonymous Born Addicted IL , USA I am like many middle age women, I have more in common with my fellow sojourners than differences. Unfortunately, or fortunately as I see today, it was and continues to be my 'differences' that draw attention to me and not in the way of highlighting my gifts and talents.
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I have always been a very tall female for my age; alas my age has caught up to my height. Along with the gift of height came… -
Dr Leora Leeder Jewish Single Mother by Choice Israel When I was five years old, my mother divorced my biological father because he officially came out of the closet; three years later my mother remarried and we became a blended family, two children (my brother and I) from the first marriage, and three more children from the second marriage.
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At the time that my mother was divorced and a single parent within a conservative and judgmental… -
Heather Hoffman She chose me CA , USA My daughter spent the first month of her life suffering from brain seizures. They went away, but she has always been different. Now eight years old, she doesn't pay attention well, has trouble understanding other kids' social cues and is often unresponsive to me, her teachers, other kids, etc.
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She's also creative, beautiful, energetic, and wise. When she's not tuning out the world and… -
anonymous Invisible MN , United States I was one of those who was profoundly sexually abused, and when something happened in the news -- when I was 32 -- I cracked. I disclosed to the rest of my family that my father had been my perpetrator. I really wished that my father could say he never really meant to hurt me; I wished more that my other family members would stand up for me and rally to my side.
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I have done much therapy,… -
anonymous Where are you from? OR , USA My Caucasian kids grew up in the central highlands of Vietnam and in Singapore, until we moved back to the US last year. Celebrating differences is so important, but is so hard when the horizontal culture of American youth is determined to stamp out differences rather than celebrate them.
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pepe perez Thanks venezuela Thanks for make me believe in new oportunities and hopeness that all it' ll be better reading this book and navigate this site.
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anonymous Mental Illness is a b.... MO , U.S.A. Mental illness is a bitch.
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There is no other word.
Our family has been struggling in an up-close-and-personal way with some form of mental illness for more than 10 years.
This is not a whine, a how-to or quite possibly anything constructive but might at be least cathartic for me.
I won’t use names to protect the innocent but it wouldn’t take a rocket… -
anonymous Your son has autism.... NY , USA “Your Son Has….
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… Autism.” That was the message on the voice mail. Now for most parents that might deliver a terrible shock, but somehow -- at least for me -- this was more of a clarification about what might have been missing from my family tree. Not really so much about my son, but more so about my family when I was growing up. Finally, there was a term that made sense for why… -
Mijken Hall Growth from loss Ut , USA My baby boy died the same day he was born- January 12, 2013 as a result of undeveloped kidneys and underdeveloped lungs. Reading Andrew's book has brought me great comfort; we all have loss in this life. One line in particular has been a revelation, "it takes an act of will to grow from loss." Thankfully, through his insightful words, I have been able to realize my burden will not go away unless I…
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anonymous falling through the cracks FL , USA My daughters are adopted from foster care, now in their 20's: one daughter is mixed bipolar, learning disabled, recently denied social security and is living in a room in a house with her boyfriend; and the other has mixed psych dxs (also hypochrondria, compulsive lying), severely learning disabled and hearing impaired, still on social security and living in an adult living facility with others not…
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anonymous I was far from the tree MI , USA After reading Far From the Tree I realized I wasn't alone. The treatment I had received from my nuclear and extended families made sense. Once my family knew that I was aware of being adopted the gloves came off. Frequently on holidays my larger cousins would hold me down while the others called me names and/or punched me. Comments like "Your mom likes me better than you because I'm blood" and "I…
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anonymous A personal story NJ , USA It is not often that I find a book and realize as I read it that I have waited my whole life for such a book. That is my experience as I read “Far from the Tree.” I am the mother of 3 grown children and the concept of “vertical vs horizontal” identities is something I have never thought about. I grew up in New York City (Washington Heights) in the 50’s-60’s . I had an older brother who…
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Chris Roberts Matthew Forever NY , America Matthew Shepard was murdered in October of 1998. This was done because he was gay. He died alone, tied to a fence on the Wyoming range. He was a thoughtful, kind person and he left us at 21. I wrote a mini-poem for him and am absolutely convinced that Matthew's memory endures:
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Matthew Shepard wide the sky, long and blue before my eye, endless you are, yes you stand me up, never really… -
anonymous Still Learning After All These Years As a three year old in the early 1940's, my thirteen year older sister evidenced schizophrenia and was institutionalized in a state mental hospital until 1979. It is the most profound experience that shaped our family and sensitized me to the cruelties of other children and the need, very strong at that time, to not let anyone know that you had mental illness in your family.
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I have been… -
Stephen Anderson My Struggle to Find Love NY , New York I am writing in order to make a contribution to Andrew Solomon's project of enabling people with horizontal identities to share their stories. I grew up in the 1940s and 50s in a middle class family in the middle of the country, in Cedar Rapids, Iowa, a town epitomizing "middleness." My vaguely articulated discomfort with the confines of "middleness" was manifested in a yearning to go away to big…
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Stephen Anderson The Clubhouse Model NY , New York I am writing at the invitation of Andrew Solomon to broaden awareness of a widespread network of rehabilitation communities for people with mental illness which aims at realigning identities. The communities are based on the premise that the illness is not all-consuming. It is not the whole of a person. The design of some 341 such communities in 32 nations is called the Clubhouse Model, and it was…
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anonymous subconscious influence? TN , USA 90+ man, attracted to men most of life, seldom acted upon. Aversion to all sex, including solitary masturbation, but could not resist that. Terrible guilt feelings. But did like girls, dated, platonic. Only child, parents divorced. Rarely saw my father. I asked my mother why I felt this guilt about sex. She was 90yrs old, I 70. She said she told me "Never touch yourself or a girl." Asked her, "How…
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Dianne Bilyak Dr. Irma King CT , USA I was honored to meet Andrew, at a fundraiser that he and his partner John, hosted for my friend Spencer's film project related to Our Little Roses in Honduras. I felt so grateful to him and for his book and was blessed to be able to thank him face to face.
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For about a year I was working on a memoir about my only sibling and our relationship. She has DS and we were born less than a year… -
George Johnson I Know This Absolutely! Arizona , USA The love of guns and the need for violent entertainment are part of our culture, our heritage. The problems caused by them will not be solved in our lifetime. Nevertheless, I am an optimist and believe that we can ameliorate their negative consequences.
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I am a retired school psychologist. I spent most of my career in education working with and for children and youth who were having difficulties… -
anonymous Coming Out to an Old Girlfriend Cheryl was my first girlfriend. Actually we were both about 6 years old at the time. Her parents lived across the street just off the public square from my grandmother. Whenever my parents took me to visit my grandmother, I was urged to go across the street to see Cheryl. I would hesitatingly walk across the street and stand on the sidewalk by the rock wall around Cheryl's house and wait for someone…
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Jody Gelb This Child CA , USA This Child
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We had pizza on Long Ridge road in North Stamford, Connecticut after our daughter was conceived on January 2nd 1994. We lived in New York City and I was 37 and this was our first child. I was more afraid of losing the pregnancy than of having a child with Down syndrome so I declined the amniocentesis because I knew that this might be our only baby and there was a risk of miscarriage… -
anonymous New voice through email Japan I have a 13 year old niece that is on the high functioning end of the spectrum. She also has a seizure disorder, and will speak but very little. After reading "Far from the Tree" there was someone with autism that told Andrew that they wish that everyone knew that people with autism know more than what we think they know. I remembered that my niece liked to look up favorite cartoons online so I know…
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anonymous Far - Feels Like the Ocean CA , USA It was never in my genes to parent this way. Instead it's a learning curve that we are all going through in our family. Instead it's a grieving process and then a healing, accepting process that will be life-long. Such is our journey as the family of a child with intellectual disability, Tourette Syndrome and ADHD. The early years of intervention, therapy and special education didn't teach any of…
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Joanna Mintzer Raising an adopted bipolar child VT , USA More important than my story, i wish to thank Mr Solomon for writing what I think is one of the mostly timely and significant books of this century. I think you should win the Pulitzer for it. You have succeeded in writing the most profound and compassionate yet unsentimental study of the problems of identity and illness I have had the privilege of reading. You eloquently illustrate and articulate…
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Theresa McMillan My hug is my Smile FL , USA My name is Theresa McMillan, and I was born with a rare congenital birth defect called Moebius Syndrome. It affects the 6th and 7th facial nerves which causes paralysis of the muscles. I am not able to smile or have any facial expressions. I also have vision and hearing difficulties and hand and feet deformities and a slight learning disability.
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When I was born the doctor and nurses were all… -
G Herbkersma A thousand thanks! CA , 94606 I have entered many rooms in my 70-some years. Reading this book allowed me for the first time to enter a room in which I felt totally accepted. Thank you!
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Karen L Transcendence NC , USA My son, John, is 31 years old and has been diagnosed with multiple leaning disabilities, RSD, Epilepsy and Schizophrenia. I believe he has been living with many of these conditions since he was 5 months old. In spite of his challenges he is living independently, speaks at local mental health conferences and has received training as a Peer Specialist with the goal of working in a field where he has…
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Lily Grinsberg Beneath the Island NJ , USA There have been many books written about ways to help people with special needs. I am aware of only one that speaks about how to develop a relationship with such people. There seems to be a consensus that they Need Fixing and the focus is on the Problem, not on their uniqueness and need to be understood. I’ve discovered that a deep relationship is possible, even when verbal communication is limited…
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Amanda What Makes You Different ... When I was a teenager, I came across a magazine article featuring a mom whose son had been born with a cleft lip and palate. In the article, the mom spoke of her son’s birth, and emphasized that it was not the joyous occasion she had expected it to be.
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When I read this, I felt a strong emotional reaction well up within me. I found myself in tears, angry toward the mother in the article,… -
Carolyn W Thanks, Andrew Solomon MI , USA I really just want to communicate my deep gratitude to Andrew Solomon. I am the bipolar mom of a child misdiagnosed with autism. I went through a horrific breakdown when our son was diagnosed at age 3, nearly seven years ago. I read The Noonday Demon a couple months ago and just finished Far from the Tree. I have seen countless psychiatrists and therapists but no one has ever given me more insight…
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anonymous mom and doctor IL , USA I am first a mom of a beautiful creative lovely young adult daughter who has chronically suffered from disabling, paralyzing OCD since childhood, I am also a child and adolescent psychiatrist, spending most of my life trying to reduce the suffering and pain of mental illness in children, adolescents and young adults. I have a bird's eye view and live daily with the devastation that mental illness…
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anonymous Waiting for Will Ia , USA Our son came to us through the Foster Care system when he was 4. We adopted him, and his 2 siblings, 2 years later. We know that he suffered emotional, physical and, now we know, sexual abuse. He struggles in social situations, had previously had violent outbursts, and has finally been able to show empathy. This past year he broke our trust that we had been building, and he broke our hearts. We now…
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Dennise O'Grady One Step Forward, Many Steps Back NJ , USA When the Newtown shooting happened and Adam Lanza's brother said something like, "My brother has Asperger's or a personality disorder," my heart sank. My own son with Asperger Syndrome/HFA has just gotten a job at 14, wore button-down shirts everyday, and didn't have a single friend (but was not anti-social). I work as a
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teacher in a school and, by Monday, an informal parent task force was forming… -
Lesli L The happiest boy TX , United States I bought your book after hearing your interview on "Fresh Air." We have no category yet for our son, adopted from China more than four years ago as older, but "normal." Now we do not know if he's 11 or 8, as dental X-rays and hand X-rays question. He is ADHD, stutters, speaks of cruel abuse (burning, being tied up) and in Texas is labeled "intellectually delayed." Still, he is so happy. We are continuing…
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Janet Anderson Money makes a difference IN , USA I have an adult son with schizophrenia...probably. The only time he went to a psychiatrist the differential included schizophrenia, depression with paranoid features and/or schizoaffective disorder. All I know is he hears voices, has delusions and hallucinations, and is socially crippled. I eagerly read the chapter on schizophrenia in the book but since we are not a family with financial means, I…
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Eraina Davis The Good Life: Autism IL , United States I gave birth to Taylor when I was twenty years old. I was a sophomore in college when my parents retired to Florida. In an attempt to create a good life for us, I left Chicago at the age of 23 to teach in NYC. Over the past seven years, I obtained three academic degrees and traveled to three different cities. As the parent of an autistic child I experienced some of the best and worst challenges on…
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Eve Mykytyn AZ , US Just wanted to mention another danger of limb lengthening. You take a child out of his or her social environment and put them in great pain. Then the child is heavily medicated with opium related drugs. It does not take a child long to realize that these drugs help ease mental pain as well. Such surgeries add a real danger of addiction to the child's other challenges.
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anonymous Felix & The Birth of Extreme Kids & Crew NY , USA I love this book! It so eloquently records the feelings and insights that I’ve had while parenting Felix, my nine-year-old son, who has autism and cerebral palsy. Felix can rage like the devil, love like the most benevolent of spirits, and explore his world with spine tingling creativity and determination. Knowing him has deepened my understanding of art, science, nonverbal communications, muscles,…
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deena karabell nothing special ny , usa child sees
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child knows
how this world goes and the child knows that the
expectations, desires, disappointments built into
the parent/child relationship became heightened when
the concept of prodigy, genius, precocious arose
behind expressions called gifts...but not for the child...
who recognized that another musical genius was just
that: another - and… -
anonymous Dyslexia and Unknown Mental Illness NY , USA Hello, I struggle to understand my 24 year old son. He has dyslexia and likely some undiagnosed mental illness that he has worked very hard to hide from me and everyone else. He was in therapy with either his 6th or 7th therapist and I think she was making progress with him, but he sabatoged that arrangement and blamed her for continually screwing up thier appointment times -- she is my therapist…
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anonymous Big Hawaii kayak adventure Ca. , U.S. I'm a 53 year old involved in a hit and run accident at age 17. Since then I have overcome my disability. Now an advanced Hangglider with over 30 years, and 3000 hours. A big wave bodyboarder (been in the magazines Surfer, Bodyboarding) as well as skiing, sailing, kayaking, etc... also a welder. I'd like to write about my life story, and some of the amazing adventures I've done, to inspire others..…
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anonymous This Tree is the Different NY , USA I heard Mr. Solomon on WNYC this afternoon. You mentioned Tom and Karen Robards, who years ago became friends of ours. We met because my wife was the Treasurer of National Down Syndrome Society, NDSS, itself founded by friends of ours, Betsy and Barton Goodwin after they had a Down Syndrome baby.
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This was in the early 80's. When my wife was pregnant with our first child, I was extremely… -
Heidi Thaens Holding My Breath for 20 Years NY , USA My beautiful, talented daughter, Juliana, was attending graduate school at Yale when she became very ill with the flu. She continued to struggle along but then developed what appeared to be chronic fatigue syndrome, which became increasingly disabling. There are innumerable people out there who have similar conditions, which no one knows how to treat; conventional medicine has no answers, although…
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anonymous Mom Ok , USA I can't stop crying reading this book. I am the mother of a child with Down syndrome. She came to us via adoption. She is a different race than me. I am so madly in love with her and grateful that she is mine. It blows my mind that out of every kind in the world, I got her. Loving her has stretched me and changed me in the best kind of ways. Dancing with her is the purest kind of joy.
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Byron M. A baby boy ID , USA My name is Byron, and I'm telling this story as if my son was telling it to you if he could.
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Hello my name is Phoenix and I am a special young man. I'm 11 years old and I am as big as a 18 year old, I wear a size 13 shoe for those who can't picture my size. The big thing is I have a brain function level of a 2 year old and can through quit the fit to, it's like I'm having a two year old… -
Amy/Buck S. It's Hard to Fall Far WA It's hard to fall far from their tree. I've had the luck of being raised Unitarian Universalist, which should imply free and liberal. I have questioned my gender since toddlerhood. Thanks to my older sisters fabulous memories of mom and me arguing about my gender and whether or not I had a penis or vagina when I could barely speak yet.
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I know now, what I had back in kindergarten were… -
Joyce JS Dream and doing great things at any age WA , USA My daughter Adora told me that she wanted her book to be published when she was six. I told her yes and went to work to help her to realize her dream. She got her first book, a big 296 pages of her stories published when she was seven. She was so inspired to teach other kids to love read and write because she loves to read and write so much. She couldn't image anybody who wouldn't love them. She started…
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Claudia P. Love Me CA , USA Despite 2 spinal fusions for severe scoliosis and chronic pain, I have managed to feel beautiful enough on the inside, that my outside really does not define me. As a Clinical Psychologist/RN I have strive to impart self acceptance and self love in the individual as well as support parents in helping their children appreciate and encourage their strengths. I recently wrote a book for kids that delivers…
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George H. The possibilities of parenthood PA I'm not a parent, and I can't claim any of the horizontal identities that Solomon discusses in Far From the Tree. In that way, I don't yet really have a story to tell. But as a young man thinking about having children in the next few years, reading this book has put me in a frame of mind that I wouldn't have even begun to fathom while contemplating impending parenthood. In many ways the idea of children…
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Jennifer B. Long live the struggle ON , Canada Where to begin. We didn't really know any deaf people before Harry was identified as deaf at the age of 4 months. The idea of "Deaf culture" seemed crazy to me. How could my baby have a different culture to our own? It was as crazy as if the audiologist had said "It turns out your son is congenitally Jewish, you're going to have to buy a second set of dishes and learn Hebrew." No. Culture is something…
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Amy Cracks Germany Just started reading the book. I wish you had discussed the bell curve. There's this group of people that have not discovered themselves yet...the slow learner. IQ 85ish. I wish they would come together. They don't qualify for services under the special Ed umbrella but could do better with interventions. I hope you might advocate for this group in the future. I consider this book an advocation for…
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Karen E. Who Does Depression Hurt? BC , Canada My husband of 42 years has always suffered from depression, something he adamantly refused to acknowledge or seek treatment for even though his brother a prominent ophthalmologist used a shotgun to take his own life.
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Then on the evening of Aug 8th of this year somewhere around 10:30PM my husband simply disappeared leaving me a note stating that he had left me. The note was actually written… -
Teresa M. Losing a father SC My story begins with my birth, I suppose most of our stories really begin there. My father was from the mountains of NC and he moved after serving in the Air Force for 4 years to S.C. (Greenville area/ eg...the "upstate of South Carolina") and he met my Mother in 1959 after his service to our country. He "courted my Mom" the old fashioned way, in July 1960 - they were married. I came along on January…
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Kathryn A. My Contrary Warrior CA , US Once I read that in certain Native American tribes, there was sometimes one of the braves who didn't do things in the same order as the others, who was different because he wanted to ride his horse backwards or go in the opposite direction or do things in ways that were not the norm. These young men were still accepted as part of the tribe, but they were known as "contrary warriors."
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Athena B. My Unique Little Girl CA , United States My daughter, Eve Troy was born on 12/29/10. I had a perfect pregnancy and had no idea there would be any problems. She is profoundly deaf, unable to eat on her own and requires a gastronomy tube, has an extremely difficult to manage eye condition called corneal anesthesia and she has both gross and fine motor delays. She has a cochlear implant which has yet to show many results. We are, however, communicating…
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anonymous Love or six feet under VA , US My husband and I are the proud parents of two sons and a daughter. Our two sons are 23 and 21, respectively. Our daughter is 17 going on 30 and has been our daughter for close to three years. We didn't adopt her—she is our beloved daughter who was born a natal son.
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DJ came out to her brother, who informed my sisters, a lesbian and a child specialist, both left leaning, and the four… -
Vicki Narcissistic parents Do you have any advice for someone with 2 narcissistic parents? I am 47 & have finally given up trying to "woo" my parents into loving me & they no longer want a relationship with me (I stopped parenting them & trying to win their favor). How can you be successful/happy in any aspect of life without the love & support of your family? It is amazing how so many parents have unconditional love for their…
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Candis I am the transgendered offspring of same-sex parents. My husband and I are now trying to go about adopting a child of our own. I have lived my life being the subject of much confusion for people and had to see my parents subject to the many questions you mention in your article. I grew up in the 80s when people in same-sex relationships didn't talk about their partners, much less acknowledge that…
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Russell Hayes We were also at the LPA convention in Boston. Our daughter was born with Achondroplasia. I read the Chapter in your book on Dwarfs. Well done, thank you. I also was an EMS Helicopter pilot in Iraq. I rescued an Iraqi family with three handicapped children with Morquio type of dwarfism. They now live with me in Idaho. My interpreter (a Muslim) in Iraq wanted to tell the Salman family, (they are also…
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Susan Donnelly My daughter (17) was born with bilateral cataracts and glaucoma. She is legally blind. Her eyes do not look "normal", she wears "coke bottle" glasses and on top of all this, she follows the beat of her own drum. This has caused her many social issues and problems. She is extremely bright and funny but, is just not your typical 17 year old. The first chapter in this book has changed my life. I spent…
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Laura I have always believed that the most important relationship we have is with our parents - they validate us, they make us feel safe, and give us the extraordinary gift of believing in us and that we can "do". I am the mother of 3 grown sons, one of whom is gay, and I have always strived to make them feel wanted and loved and that they belong. Relationships are complex and can be difficult, but it's…
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anonymous I am a transgender man in my twenties I am a transgender man in my twenties, happy and studying law. My parents were supportive, loving, and kind as I transitioned. Your book helped me to see the heroism in what they have shrugged off as merely good parenting. Also, thank you for your family's story in Chapter XII. Seeing another way of making a family makes it easier to envision one of my own.
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anonymous Child Slavery PA , United States I was put up for adoption and abused on a dairy farm. I was adopted to save a marriage. I was sent to the barn at age 5 as my mother despised me. I was worked to the point of exhaustion and beaten daily...this is literally 1/2 mile from where painter Grandma Moses lived. I'm now 47 with a wonderful family. I have battled addictions and embraced recovery. But I believe that child slavery is an ongoing…
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Karen Gonzalez My dear son, who was 17 years of age, ended up being arrested for going along with armed robberies. Two robberies, in fact. He was sentenced to 20 years and 4 months behind bars after being tried as an adult. This is a non-murder case, although a man was shot in the leg (not by my son). Yet my son was considered a part of the crime, and was still sentenced for this length of time. He is now 19 years…
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anonymous Where do you go for help? My fiance has an adopted child who has some violent tendencies and has been to multiple short- and long-term facilities for treatment. He has recently threatened to kill my fiance and was taken to a facility but was released to his mother after a few days even though there has not been a big change in attitude.
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Where do you go for help if the resources available to you have not worked… -
Catherine M My family story is a Chinese box tale of learning disabilities…
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I have a MSW and MFA in Creative Writing. I have been trying to write about the convoluted illnesses and disabilities in my family including my (totally unintended and thank you for allowing me to know I am not the only parent who would not have children if I could see the future) two sets of twins. I have so much and am…