Suffice it to say that I have started a group called Orchard, based on the PLAN organization out of Van Couver, CA. It's goal is to build social networks around our loved ones. There is too little support out there. These networks provide support, not only to the disabled individual, but to the individual's family/constellation as well.
We have just started our work, but we will not refrain from growing this Orchard of needed support.