Andrew Solomon Far From The Tree

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      Son Deaf Dwarfs Down Syndrome Autism Schizophrenia Disability Prodigies Rape Crime Transgender Father
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      Son Deaf Dwarfs Down Syndrome Autism Schizophrenia Disability Prodigies Rape Crime Transgender Father
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      Love Hope Policy Transcendence Struggle Illness Identity Activism Prejudice Belief Breakthroughs Science
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Heidi Thaens Holding My Breath for 20 Years NY , USA
My beautiful, talented daughter, Juliana, was attending graduate school at Yale when she became very ill with the flu. She continued to struggle along but then developed what appeared to be chronic fatigue syndrome, which became increasingly disabling. There are innumerable people out there who have similar conditions, which no one knows how to treat; conventional medicine has no answers, although "alternative" practitioners claim to have some. In short, Julie has had to become her own doctor, dealing, for example, with a chronic candidal infection by following a low-carb diet and taking various antifungal supplements. It has been a roller coaster for both of us for some 20 years. (I could perhaps write a book on what an illness of this kind can do psychologically to patients and those who love them.) Things seem to be looking up somewhat lately, thanks to a book on adrenal fatigue and a supplement called Isocort but not to any help from the many doctors we have consulted, one of whom actually said, condescendingly, "You are a fine healthy young lady. Don't worry about your health. If you have any questions, just come back to me and I'll deal with them." Par for the course, as so many other sufferers of CFS could attest!
Related themes and chapters: Disability
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