This was in the early 80's. When my wife was pregnant with our first child, I was extremely worried that the baby would be unhealthy, have Down Syndrome or have other health issues. Somehow, I feared that our close association with NDSS was an omen. I was a prospective father who, during the pregnancy, actually lost a lot of weight, despite eating to keep up with my pregnant wife: nervousness was a great way to diet.
But I had grown up with a mother who had Multiple Sclerosis. I knew what it was like to be on the 'healthy' side of your equation. Was I embarrassed by the need to walk with her arm in arm when she used a cane, later by wheel chair that I would push, later by her incontinence when I was seven, when I was a teenager, when I was a young man? Did I struggle with the responsibility of being a caretaker? Of course the answer is yes. (My father and sister participated, too, and no doubt have their own stories.)
But I loved her greatly and dearly, and some 45 + years after she died of complications from the MS, I still miss her.
But with complete honesty, having spent the first part of my life as a person who experienced a life somewhat out of the mainstream due to illness in the family, I dreaded the possibility that I might experience the same in the second part of my life.
Our two children are healthy and successful. No grandchildren yet, but I will worry, and do worry, about that too.